Space manual copd

SPACE for COPD is a supported self- management programme, which provides people with an opportunity to increase their knowledge and confidence in enacting these skills throughout their daily lives. It will provide more choice for patients in how they can be supported to manage their condition, improve patient care and have the potential to reduce healthcare utilisation with associated cost savings.

This website is no longer being updated. More specifically, the data we collect will inform:. Acceptability and usefulness of the programme to participants in this format and over this time period;. Focus groups will be conducted with each self-management programme group, with between 3 and 10 participants number dependent on each group size.

This difference in participant numbers allows for participant opinions to be gathered even if a small group is encountered eg, due to drop-out.

Although three is a very small number for a focus group, it allows all participant opinions to be gathered, regardless of group size. Participants will be familiar with one another which can help facilitate discussion or the ability to challenge each other comfortably as they have attended multiple group sessions together. Purposive sampling will be employed to recruit intervention participants.

Focus groups will be carried out at the end of the last group session for participant ease, as discussed with study patient representatives.

We will prompt participants allocated to each self-management group of the focus group discussion prior to the last session in the attempt to gain experiences from as many participants as possible, regardless of the number of sessions attended in total.

Focus groups will be transcribed verbatim by a professional transcriber, with identifiable information removed. Focus group questions have been devised based on relevant literature and experience of the team. Minutes will be taken during the discussion and anonymised. This will primarily be completed on an intention-to-treat analysis.

Secondary per protocol analyses will be carried out. A post hoc analysis will be carried out, which will exclude patients in either arm that received pulmonary rehabilitation as part of their usual care. We would anticipate that patients who participate within the study will not require pulmonary rehabilitation. Quantitative data for all outcomes will be transcribed from the case report form CRF onto an electronic database. A statistical software package will be used to carry out quantitative analyses.

Continuous variables will be presented as mean and SD or median and IQR, and categorical data will be presented as frequencies and percentages. Data will be checked for normality and appropriate parametric and non-parametric tests will be used. Any baseline differences will be adjusted for. Any missing data will be imputed, and both intention-to-treat and per-protocol analyses will be conducted. This approach follows six distinct stages: familiarisation with data, generating initial codes, searching for themes, reviewing themes, defining and naming themes; and producing the report.

The psychologist and the physiotherapist will carry out initial coding and a sample of interviews will be coded by another member of the team to ensure consistency and to enhance interpretive authenticity. Throughout the data analysis, the team will meet to discuss and review emerging themes and search for accounts that provide contesting views of the same phenomena or identify different phenomena.

Our patient representatives will be invited to comment on our anonymised findings throughout the analysis process to ensure interpretations made by researchers stay close to the direct experience of patients. All patient information that is collected during the course of the research will be kept strictly confidential.

Any information about the patient who leaves the hospital will have their name and address removed. Participants will not be identified in any subsequent written material. Results will be reported in such a way that completely preserves confidentiality. Protocol amendments will be approved by the ethics committee and regulatory authorities as per current guidelines and will be communicated to relevant parties by the study team. We plan to publish the results of the study in peer-reviewed journals and present them at appropriate national and international respiratory and physiotherapy conferences.

Social media will be used to disseminate information and summaries of results to a wider population. The CLAHRC East Midlands is a large organisation that strives to improve health outcomes in the population across the East Midlands through delivering high-quality, world class research.

This organisation will be used to further disseminate results within the East Midlands. We also hope to provide a summary of results to the study participants. Furthermore, we plan to hold a participant dissemination day towards the end of the study. This will enable participants to contribute to the final report and other result dissemination activities. The institution also has an active and dynamic public involvement group for pulmonary and cardiovascular rehabilitation.

The group will be used to create and coordinate strategies for further disseminating the results into the public domain. The study may also be subject to internal and further external audits to ensure safety of the trial. The importance of self-management is widely acknowledged, and opportunities should be maximised from the time of diagnosis through to more severe disease.

Opportunities to improve self-management skills should be embedded in a pulmonary rehabilitation programme. In the future, there may be an opportunity to explore the value of the SPACE for COPD C programme alongside rehabilitation, or indeed, an alternative for those unwilling or unable to attend. However, for those with milder disease, there is no provision for a structured supported self-management programme in the UK.

Recruitment was 20 months. CB, SS, PK and TH-D have been involved in drafting the work or revising it critically for important intellectual content and have given the final approval of the version published. Disclaimer Roles of the funder: management of staff, study progress, reporting and dissemination activities.

Provenance and peer review Not commissioned; externally peer reviewed. Data sharing statement Additional unpublished data from the study is still being collected and analysed and is only available to members of the study team. You will be able to get a quick price and instant permission to reuse the content in many different ways.

Skip to main content. Log In More Log in via Institution. Log in via OpenAthens. Log in using your username and password For personal accounts OR managers of institutional accounts. Forgot your log in details? Register a new account? Forgot your user name or password? Search for this keyword. Improving quality of life, exercise performance and reducing anxiety. Managing your symptoms. Getting you active. A tailored programme of exercise and activity specifically designed for individuals with COPD.

The manual is divided into four sections and covers topics such as: improving your physical activity, managing breathlessness, anxiety management, managing your medication. There is also an appendix containing information that may not be relevant to all individuals with COPD but is there for reference, for example oxygen and relationships. Related documents. Tell us what you think We want to hear from you on how to improve our service and provide the best care possible.

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